My Blog List

12 December, 2011

THIS TOO SHALL PASS

                                      This too shall pass

Once again I get to complain about the doctors.  This has been going on for so long, I am beyond board with it.  All these new laws that have come into effect, have put my medications in the same category as cocaine and meth.  As I've said before, drugs take away from the quality of your life, whereas medications add to the quality of life.  So how do they reconcile calling my medication a drug.  Without my " drugs" I would have no quality of life.  I would be lying in a bed screaming day and night, until it all became too much and I just ended it, to put it politely.  The pain Dr. Is giving me plenty of pain medication however he will not prescribe medications that are in the category of psych.                                                                                                                        meds.  If the medical board looks at him they will ask why is a pain Dr. and prescribing psych medications?  The answer is easy, every medication has more than one purpose, the medication that I need that falls under the category of  psych medication when in fact it helps more with my pain than most pain medications.  So, my Physician can not write a prescription the for a medication, even though he knows it will stop the horrid spasms, because it is a psych med.  Now I am trying to get in to see a psychologist, it can be a 3 to 6 month wait to get in.  And to make it even better when I called my pain doctor's office the nurse informed me that I've been calling too much and I was about to be thrown out of the clinic.  She thought I was trying to get the pain Dr. To give me the anti spasm   medication,I was calling to tell her that I could not get in to see the psychologist.  When in fact I was calling each time to tell her about a problem I was having getting or filling a prescription and that he wrote.  This is becoming a comedy of errors, only I'm not laughing, I am lying here in my bedroom, sometimes in my own feces, sometimes in my own tears, coping with having to call doctors and pharmacies from morning until night, rarely do I laugh.  Don't get me wrong, I try, it's just getting harder and harder.  And now they telling me to call them back so we can see what's going on with the psych doc.  This is complete lunacy I am about ready to beg for a 72 hold, at least then I could get out of my bed and I could get the medications I need.  Now isn't that just that a sad state of affairs, because my medications are now called " drugs".to make it even better when I called my pain doctor's office the nurse informed me that I've been calling too much and I was about to be thrown out of the clinic.  She thought I was trying to get the pain Dr. To give me the anti spam   medication,I was calling to tell her that I could not get in to see the psychologist.  When in fact I was calling each time to tell her about a problem I was having getting or filling a prescription and that he wrote.  This is becoming a comedy of errors, only I'm not laughing, I am lying here in my bedroom, sometimes in my own feces, sometimes in my own tears, coping with having to call doctors and pharmacies from morning until night, rarely do I laugh.  Don't get me wrong, I try, it's just getting harder and harder.  And now they telling me to call them back so we can see what's going on with the psych doc.  This is complete lunacy I am about ready to beg for a 72 hold, at least then I could get out of my bed and I could get the medications I need.  Now isn't that just that a sad state of affairs, because my medications are now caleed " drugs".I've been calling too much and I was about to be thrown out of the clinic.  She thought I was trying to get the pain Dr. To give me the anti spasm   medication,I was calling to tell her that I could not get in to see the psychologist.  When in fact I was calling each time to tell her about a problem I was having getting or filling a prescription and that he wrote.  This is becoming a comedy of errors, only I'm not laughing, I am lying here in my bedroom, sometimes in my own feces, sometimes in my own tears, coping with having to call doctors and pharmacies from morning until night, rarely do I laugh nymore.  Don't get me wrong, I try, it's just getting harder and harder.  And now they telling me to call them back so we can see what's going on with the psych doc.  This is complete lunacy I am about ready to beg for a 72 hold, at least then I could get out of my bed and I get the medications I need.  Now isn't that just that a sad state of affairs, because my medications are now caleed " drugs".

11 December, 2011

THIS TOO SHALL PASS

Humiliation this too shall pass
                            I've been writing this bog so that people can understand and see what people with disabilities must sometimes go through just trying to exist.

                              The other night I woke up to a horrid stench.  I realized that it was me, in my sleep in the middle of the night I had defecated all over myself having little control over my body.  I got up out of bed and,  began removing my close, not an easy thing to do.  Then I had to clean it all up, crying, humiliated, devastated and began to work.  First the floors, then my body, and  my shoes, it would seem I had also released my bladder as I was cleaning.  I am 50, not five, NOT 105, 50!  At least this time it was my own and not some friends who did not have a home.  The pain caused by all this work has made it impossible for me to move today.  So now I lay here crying and humiliated.  It's a really hard to continue on minute each day is just another struggle.  I don't remember the last time I went out of the house to have fun, it is always to a doctor's appointment.  This by far has been the worst blog I've ever had to write.  I pray to g-d I never have to write one like this again.  People with body issues carry many secrets we try to pretend that where Normal, the world prefers to see us that way.

Most of the time I've written about the problems with other entities that we encounter on a regular basis and that cause us constant anguish.  This time I have given you a peak into all were secret life.  But this too shall pass! 

10 December, 2011

THIS TOO SHALL PASS

                                                                                                                                

09 December, 2011

I was already today to start talking about  getting out of the hell I have been living in for four years.  I was so excited,  peace and joy had plainly entered my world.  And then it all came crashing in.  Once again the doctors through me for a loop, just when I think it's all over I have the medicines I need so I can play and  have a life again, one Dr. Just one refuses to give me the one medication I need so that all the rest will work.  So I decide to be proactive and call the doctor's office, I was asking for the name of their Dr., To go there and get what I need.  Only to be told that I am calling and bothering them too much and I will be thrown out of the clinic.  O come up on, the doctors don't do their job or the nurses I am told to do it for them than I am accused of calling too much.  Why don't they do their job so I don't have to, I'm not getting paid they are, but yet every time there's a problem I am told to fix it.  Now, I am being a pain, this is all just too much.  I was feeling such tranquility this morning, now again I am ready to pull my hair out.  I am so upset right now, I can't even continue writing.  When you think your in  Heaven and hell comes crashing back in it is overwhelming all consuming.

03 December, 2011


THIS TOO SHALL PASS

Today I'm going to talk about the state in which people in the United States of America treat each other.  I find it appalling that so many people in this country place a greater importance on things rather than on people.  He who has the most toys still dies.  People who have love never die.  In some ways I am thankful for my physical state of being, I have had to let go of the physical world more and more all the time.  So why am I still here, it is love and compassion that keep me going, give me a reason to look forward to a future.  It is love and only love that allows me to have hope for my future, the future of my children and the and the fate of my children's children.  This country has become obsessed with fixing, things, and people, as if they are broken, we are whole human beings, we just have bodies that do not work correctly, bodies are but shells.  There's nothing wrong with me other than my body, yet I am treated as if my entire being is broken.  I am so tired of not being wanted anywhere, and treated as if I am a burden.  I did not choose to be this way, but since I am I am making the best of it.  I have learned many lessons, I have felt pain deeper than anyone could ever imagine, I know what hell is.  I have been there many times, but I've also come back many times.  Each time I come back it is sweeter and sweeter, the love that I can feel, the joy, the simple pleasure of just being it is something I might never know if my body were not in this state.  I don't know if I would be aware of how unimportant it is to chase after things,  the only thing worth chasing is love.  Showing, telling, and behaving in a loving manner is really the only thing that counts in this existence.  Everything else is transitory, love between two human beings is not.  Even after we're gone the love that we have for others continues on,in the manner in which we have treated others it still lives on in their hearts and in their actions.

02 December, 2011

THIS TOO SHALL PASS

The out This will be my first time the blogging using voice recognition.  This might be a bit strange and as I have never spoken into a computer before.  Today, I would like to talk about the usage of the emergency room.  Yesterday I called my primary Physician was a problem, I told him that my foot had turned black and blue for a second time.  He told me to go immediately to the emergency room, when I read when I got there is a staff was angry that I even bothered to come in.  They saw me as a big waste their Time &Energy.
                           The night before I had been blogging for many hours I tried to stand up and fell on the floor and the pain was excruciating.  So I also mentioned that to my primary and they said definitely go to the emergency room.
                           It turns out that with the new laws the emergency rooms will no longer treat for pain.  In the end I wasted a lot of my lfl but that the out energy and time and the energy time and emergency room.  I've even had the nerve to bleed on a nurse, boy was he mad at me.  In the end, they kicked me out of their after an hour and did nothing for me.  My ride could not get their for another hour, the nurses were really angry then.  I would not leave the room because I had to lay down and could not sit.  All and all it was a complete waste of my precious energy and the insurance companies money.  I am so angry at what is going on today in health Care System, everyone is afraid to touch someone in chronic pain.  The real problem is not that I'm in chronic pain, it is that I'd do not have anything left of my spine.  I am tired of being labeled as a chronic pain patient.  Chronic pain is not the issue, my back is the issue.  But we've all been nicely put into a box called chronic pain.