firstly, I have not been able to sit up for more than a few min. at a time and there is so much I need to say. Secondly my eye site has been so bad that it just plain old hurts to read. I have gone blind 3 times now, which means pile upon pile of steroids. In plain old English I am going crazy which makes it very difficult to concentrate on much of anything for more than a moment,just not enough time to say what I need to. I will for this purpose try and make a long story short. As I said my eyes keep leaving me every time I get of these damn steroids. I have learned that they not only do they keep you from sleeping which has all sorts of consequences but they have a psychological affect as well. They also suppress the breathing which has become one of my major issues lately. So of course the answer for breathing problems is~~~steroids~~. You starting to see a vicious cycle here? I got to spend a few days as a guest of our insurance company at the local hospital. On the second day in there the back part of the bed released sending me straight back onto my back.The nurse said very nicely that they do release at times but not to worry about the bed it was ok, what about ME? A week and a half later I can stand for only 1 or 2 min. before my leg pain becomes unbearable. Today I go see my back Dr. In the mean time they found a fourth growth on my thyroid, which I know needs to be taken care of, or at least get to Dr. and have a biopsy. Are you seeing the crazy build up of multitudes of body issues. I also learned in hospital that they deal ( treat ) only the symptom you were admitted for. As if that problem in no way affects other aspects of your body! It is just too too too much to even think of the ignorance in that way of practicing medicine! What finally got me to write you might ask,good question. After being up all night except for a few 1/2 hour naps my sweet compassionate husband come upstairs from the sofa and tells me I am over medicated (meaning narcotics) and I need to go into detox. Not for the steroids, with their multitude of sins but for the narcotics of which I am presently on 1/3 of what I used to be on. The only thing right now that is helping at all, keeping the pain under some kind of control and keeping what precious life I have l going forward. Right now I am fighting so I won't slip backwards. All he has to say to me is I need rehab. He has NO clue, he'll say what he wants to say and then tell me he is tired has to go back to sleep,and has no more time to talk to me. I really don't know how I am going to ever heal in such an ignorant, degrading ,uninformed ( already said ignorant) atmosphere.It is so sad, a little understanding and compassion go such a long way. THIS IS THE SHORT VERSION OF MY PAST MONTH, can you imagine the long one? Makes by back hurt more just thinking about it. Once again my back is telling me I've gone way to far,I MUST STOP. PS. THE ONLY SOLUTION I can think of right now is to get away from here, any other suggestions?
life in constant 24/7 pain, dealing with pain as it effects every aspect of life, doctors ,their attitudes. Family, their lack of understanding, and friends.Who try but have very full lives with little time. I AM MOT A JUNKIE, I DO NOT SEEK PAIN MEDICATION~~I SEEK PAIN REFILE~~~ I WANT A QUALITY LIFE. Part of exsitanse not watching from a distance, in pain.
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12 August, 2010
this too shall pass-living in constant pain
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my summer
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